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TriStar Centennial Medical Center
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Resource Guide for Chromosomal Abnormalities

Revision Information

  • Reviewer: Kari Kassir, MD
  • Review Date: 02/2016 -
  • Update Date: 05/20/2015 -
  • Address:

    4301 Connecticut Avenue, NW, Suite 404

    Washington, DC 20008

  • Phone:

    1-202-966-5557

  • Internet address:

    http://www.geneticalliance.org

  • Description of services provided:

    The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

  • Address:

    PO Box 872

    Pine, CO 80470-0872

  • Phone:

    1-888-999-9428

  • Internet address:

    http://www.genetic.org

  • Description of services provided:

    This website provides support services, a newsletter, and information about sex chromosome variations.

  • Address:

    1275 Mamaroneck Avenue

    White Plains, NY 10605

  • Internet address:

    http://www.marchofdimes.org

  • Description of services provided:

    The March of Dimes provides information on pregnancy and birth defects and gives referrals.

  • Address:

    666 Broadway, 8th floor

    New York NY, 10012

  • Phone:

    1-800-221-4602

  • Internet address:

    http://www.ndss.org

  • Description of services provided:

    The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

  • Address:

    330 North Wabash Avenue, Suite 2000

    Chicago, IL 60611

  • Phone:

    1-312-321-6834

  • Internet address:

    http://www.nsgc.org

  • Description of services provided:

    On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

  • Address:

    2982 South Union St.

    Rochester NY, 14624

  • Phone:

    1-800-716-7638

  • Internet address:

    http://www.trisomy.org

  • Description of services provided:

    This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

  • Address:

    11250 West Road, Suite G

    Houston TX, 77065

  • Phone:

    1-800-365-9944

  • Internet address:

    http://www.turnersyndrome.org

  • Description of services provided:

    The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

  • Address:

    P.O. Box 268

    Lakewood CA, 90714

  • Phone:

    1-888-970-0777

  • Internet address:

    http://www.fivepminus.org

  • Description of services provided:

    This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.

The health information in this Health Library is provided by a third party. TriStar Health does not in any way create the content of this information. It is provided solely for informational purposes. It does not constitute medical advice and is not intended to be a substitute for proper medical care provided by a physician. Always consult with your doctor for appropriate examinations, treatment, testing, and care recommendations. Do not rely on information on this site as a tool for self-diagnosis. If you have a medical emergency, call 911.